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Living with Polyneuropathy CIDP, GBS, & CMT - Support network for Polyneuropathy, Guillian-barre Syndrome (GBS), Chronic Inflammatory Demyelinating Polyneuropathy (CIDP), and Charcot-Marie-Tooth (CMT)

  • http://www.livingwithpolyneuropathy.org/c/welcome Welcome - Living with Polyneuropathy CIDP, GBS, & CMT - Welcome to the new Bens Friends Polyneuropathy Site. Polyneuropathy is damage or disease affecting peripheral nerves) in roughly the same areas on both sides of the body, featuring weakness, numbness, pins and needles, and burning pain. It usually begins in the hands and feet and may progress to the arms and legs; and sometimes to other parts of the body where it may affect the autonomic nervous system. It may be acute (appearing suddenly, progressing rapidly and resolving slowly) or chronic (emerging and developing gradually). A number of different disorders may cause polyneuropathy, including Guillian-barre Syndrome, Chronic Inflammatory Demyelinating Polyneuropathy, and Charcot-Marie-Tooth which are predominantly motor peripheral neuropathies Although poly-neuropathy is common, it most often is the result of “something else” Guillian-barre Syndrome, Chronic Inflammatory Demyelinating Polyneuropathy, and Charcot-Marie-Tooth are known disease are either hereditary or autoimmune in nature and are “rare” This site is for peer to peer support for patients, family members, and caregivers of those diseases. Although the diseases are different (and we have dedicated sections for each) day to day living with them, symptoms and treatment are very similar and your experiences can help others even if their disease diagnoses is “different”.
  • http://www.livingwithpolyneuropathy.org/c/bens-friends Bens Friends - Living with Polyneuropathy CIDP, GBS, & CMT - Our mission at Ben’s Friends is to ensure that patients living with rare diseases or chronic illnesses, as well as their caregivers, family, and friends, have a safe and supportive place to connect with others like them.
  • http://www.livingwithpolyneuropathy.org/c/new-member-check-in New Member Check In - Living with Polyneuropathy CIDP, GBS, & CMT - New members, start your experience here. Introduce yourself and share your story. Let us welcome you
  • http://www.livingwithpolyneuropathy.org/c/newbies-guide-to-polyneuropathy Newbies Guide to Polyneuropathy - Living with Polyneuropathy CIDP, GBS, & CMT - Included in this category are resources written by members by members and notes from the moderators. We strongly encourage all members to explore these pages. This category will grow over time to include more and more information
  • http://www.livingwithpolyneuropathy.org/c/complimentary-therapies Complimentary Therapies - Living with Polyneuropathy CIDP, GBS, & CMT - Welcome to Complementary Therapies! This is the place to discuss the array of complementary healing modalities that many of us rely on to help us live healthier lives. Whether you're looking to do more to promote your own health while undergoing medical treatment, or are waiting to get medical treatment and are looking to do what you can to feel better in the meantime, this is the place to post your questions and information. We will discuss everything from acupuncture and chiropractic to nourishing our bodies, minds, and spirits. This is the place to discuss healing modalities that can complement medical treatment
  • http://www.livingwithpolyneuropathy.org/c/emotional-support-new Emotional Support new - Living with Polyneuropathy CIDP, GBS, & CMT - Having a rough day? We're here to listen. Even though we have the diseases separated to deal with disease specific issues. PLEASE don't hesitate to offer a hand up to anyone needing it
  • http://www.livingwithpolyneuropathy.org/c/prayers-and-healing-energy-requests Prayers and Healing Energy Requests - Living with Polyneuropathy CIDP, GBS, & CMT - A place to request prayers and healing energy for yourself or others, from our community of caring, supportive friends, for any issue(s) we deal with.
  • http://www.livingwithpolyneuropathy.org/c/recommend-a-doctor Recommend a Doctor - Living with Polyneuropathy CIDP, GBS, & CMT - Want to recommend a doctor, therapist, or clinic? Positive review only, please.
  • http://www.livingwithpolyneuropathy.org/c/chat Messaging - Living with Polyneuropathy CIDP, GBS, & CMT - This is our new chat. Just reply. If you want to go to a private chat simply click on the mebers avatar and start messaging. You can invite others to join you. For now we don't have a "who's online" box but hope to add that feature soon!
  • http://www.livingwithpolyneuropathy.org/c/events Events - Living with Polyneuropathy CIDP, GBS, & CMT - Events of interest to Polyneuropathy Patients. Just email to have the staff add your event.
  • http://www.livingwithpolyneuropathy.org/c/site-feedback Site Feedback - Living with Polyneuropathy CIDP, GBS, & CMT - Discussion about this site, its organization, how it works, and how we can improve it.
  • http://www.livingwithpolyneuropathy.org/t/using-discourse/2558 Using Discourse - Welcome - Living with Polyneuropathy CIDP, GBS, & CMT - Here are a few quick tips to get you started: Reading To read more, just keep scrolling down! As new replies or new topics arrive, they will appear automatically – no need to refresh the page. Navigation •For s…
  • http://www.livingwithpolyneuropathy.org/t/getting-started-on-discourse/2559 Getting Started on Discourse - Welcome - Living with Polyneuropathy CIDP, GBS, & CMT - How do I personalize my profile page? [image] 1.click on your image in the top right corner of any forum page 2.select “preferences” in the drop-down menu 3.on this page you can upload a profile picture, background imag…
  • http://www.livingwithpolyneuropathy.org/t/your-mods-staff/2734 Your Mods/Staff - Welcome - Living with Polyneuropathy CIDP, GBS, & CMT - To contact your community moderator, click on their name (or right-click to open a new tab): ModSupport CanadianGirl making_lemonade writes-a-lot CM1 Michael_C_Clark Click on the blue Message box Enter your discussio…

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  • Erik S. - Nice sleek case

    Just received this case in the mail. I had a clear otterbox symmetry case on my 6s but since the 7 plus needs a larger camera cut out, I needed to get a new case. I love how durable it feels and the responsiveness of the buttons. I definitely would recommend this case if you want the best bang for your buck.

  • kenny - Might not work for all but it worked for me ...

    Might not work for all but it worked for me. Mines came with a antibacterial pill thing which I took as well as these and got rid of my uti! Drank a lot of water and stayed consistent with taking these :)

  • Tom McDade - I originally found this product while on vacation, about ...

    I originally found this product while on vacation, about 500 miles from home, and it seemed to help my pet. Unfortunately, no retailer in my area carries it, so I ordered it (twice!) through Amazon. Both times I received a bottle which does not produce a mousse, just an oily mess. No amount of shaking the bottle will help, it just sprays out as a liquid. The liquid helps with my pet's itching, but the resulting oily fur is not worth the money.

  • Fran - Trick or treat 😁

    Definitely a Treat.... thanks Alexa Riley to giving us yet again another sweet and hot story 😁 I can't wait for the next one 😘